Congenital Sensory Neuropathy Treatment in India
About Congenital Sensory Neuropathy
Key Highlights
-
Provides a definitive diagnosis for unexplained sensory loss present from birth.Enables personalized, long-term management and care planning.Facilitates genetic counseling for family members regarding inheritance risks.Helps in implementing preventive strategies to avoid painless injuries and complications.Often involves a multidisciplinary team for comprehensive patient support.
Who is this surgery for?
- Infants or children presenting with absent or significantly reduced reaction to pain (e.g., painless fractures, burns).
- Unexplained lack of sweating (anhidrosis) leading to recurrent fevers.
- Developmental delay in motor skills due to impaired sensory feedback.
- Family history of similar sensory disorders or known hereditary neuropathies.
- Chronic, unexplained ulcers or injuries on the extremities without typical pain response.
How to prepare
- Compilation of a detailed personal and family medical history, including any known genetic conditions.
- Neurological clinical examination to assess sensory deficits, reflexes, and motor function.
- Scheduling of diagnostic tests such as nerve conduction studies (NCS) and electromyography (EMG).
- Preparation for genetic testing, which may involve a blood draw and pre-test counseling.
- Discussion with the neurologist about the diagnostic process, potential outcomes, and next steps.
Risks & possible complications
- Discomfort or minor pain during diagnostic nerve conduction studies or skin biopsies.
- Psychological impact of receiving a diagnosis of a chronic, inherited condition.
- Potential for inconclusive genetic test results, requiring further investigation.
- Risks associated with any required procedures (like biopsy), including infection, bleeding, or scarring.
- Emotional stress related to genetic counseling and implications for family planning.
Recovery & hospital stay
- Recovery from diagnostic tests like NCS/EMG is immediate, with no specific downtime.
- If a skin or nerve biopsy is performed, care for the wound site as directed to prevent infection.
- Begin implementing the neurologist's management plan, which focuses on safety and injury prevention.
- Schedule follow-up appointments to monitor progression and adjust the care plan as needed.
- Engage with recommended specialists (e.g., orthopedic surgeons, physical therapists, pain specialists) for ongoing support.
-
Typical hospital stay:
Typically outpatient (0 days)
-
Expected recovery time:
Varies; management is lifelong
Frequently Asked Questions
If you are considering congenital sensory neuropathy in India, these questions and answers can help you make a confident, informed decision.
Popular choices for congenital sensory neuropathy in India include Manipal Hospital Gurgaon, Manipal Hospital Jayanagar, Manipal Hospital Malleshwaram, Manipal Hospital Kharadi, KMC Hospital Mangalore, known for experienced specialists and advanced surgical infrastructure.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform congenital sensory neuropathy. MediFyr helps you compare neurologists and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for congenital sensory neuropathy compare across other countries where we have data.
Top hospitals for Congenital Sensory Neuropathy in India
These partner hospitals in India have dedicated neurology teams and experience managing patients undergoing congenital sensory neuropathy.
Mangalore, India
38 Doctors
Pooja Khan, a 28-year-old graphic designer,...
Pooja Khan, a 28-year-old graphic designer, had always been 'clumsy.' As a child, she burned her hands without feeling the stove's heat and twisted her ankles without noticing the sprain. Her parents dismissed it as carelessness. In her 20s, the problems intensified. She developed chronic foot ulcers from ill-fitting shoes she couldn't feel, and a severe kitchen burn became infected because she didn't register the pain. Exhausted by unexplained injuries and frustrated by being labeled accident-prone, she sought answers. Her neurologist, after noting her absent ankle reflexes and insensitivity to pinprick and temperature tests on her limbs, recommended genetic testing for Congenital Sensory Neuropathy. The diagnosis, confirmed by the test, was a devastating yet validating moment. There was no curative procedure, but the 'treatment' was a comprehensive management plan. Pooja worked with a multidisciplinary team to learn meticulous daily foot inspections, proper footwear, and wound care prevention. She installed temperature guards on all faucets. Emotionally, she cycled through grief for the 'normal' life she never had and anger at the years of misunderstanding. However, the diagnosis became a powerful tool. Knowing the cause allowed her to proactively protect her body. The 'recovery' was a shift to a managed, careful life. She is now an advocate in online support groups, using her design skills to create educational materials about living with sensory loss. Her journey moved from confusion and self-blame to empowerment and self-protection.
Neurologists for Congenital Sensory Neuropathy
Explore experienced neurologists who regularly perform congenital sensory neuropathy and provide pre- and post-operative care in India.
- 6 Years Experience
- Neurologist
Manipal Hospital EM Bypass, Kolkata
- 14 Years Experience
- Neurologist
Manipal Hospital Dwarka, Delhi
- 10 Years Experience
- Neurologist
Manipal Hospital Kharadi, Pune
- 29 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 27 Years Experience
- Neurologist
Manipal Hospital Millers Road, Bangalore
- 8 Years Experience
- Neurologist
Manipal Hospital Sarjapur Road, Bangalore
- 9 Years Experience
- Neurologist
Manipal Hospital Bhubaneswar, Bhubaneshwar
- 27 Years Experience
- Neurologist
Manipal Hospital Millers Road, Bangalore
- 14 Years Experience
- Neurologist
Manipal Hospitals Broadway, Kolkata