Retinitis Pigmentosa Treatment in India
About Retinitis Pigmentosa
Key Highlights
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Personalized Management Plan: Care is tailored to the specific genetic subtype and stage of the disease.Proactive Vision Preservation: Regular monitoring helps track progression and manage complications like cataracts or macular edema.Access to Advanced Therapies: For eligible patients, treatments like voretigene neparvovec (gene therapy) can help restore some visual function.listrongHolistic Support:/strong Management includes genetic counseling, nutritional advice (e.g., Vitamin A palmitate), and low-vision rehabilitation./lilistrongFocus on Quality of Life:/strong The goal is to maximize independence and adapt to changing vision through assistive devices and training./li/ul
Who is this surgery for?
- Diagnosis of Retinitis Pigmentosa based on clinical symptoms like night blindness and peripheral vision loss.
- Identification of a specific genetic mutation that is eligible for targeted gene therapy (e.g., RPE65 mutation).
- Development of secondary complications such as cystoid macular edema or posterior subcapsular cataracts that require treatment.
- Significant progression of vision loss requiring surgical intervention like a retinal implant (Argus II).
- Patient seeking comprehensive management including genetic counseling and low-vision rehabilitation services.
How to prepare
- Comprehensive Ophthalmic Exam: Includes visual field testing, electroretinography (ERG), and optical coherence tomography (OCT) to establish a baseline.
- Genetic Testing: Blood or saliva sample is often taken to identify the specific genetic mutation causing RP.
- Medical Consultation: Review of overall health and medications to ensure fitness for any planned surgical intervention.
- Counseling Sessions: Discussions with the ophthalmologist and a genetic counselor about the disease, treatment options, expectations, and inheritance patterns.
- Pre-operative Measures: If surgery is planned (e.g., implant), standard pre-surgical tests and fasting instructions will be provided.
Risks & possible complications
- Procedure-Specific Risks: For gene therapy or implant surgery: infection, inflammation, increased intraocular pressure, or retinal detachment.
- Limited or Variable Efficacy: Treatments may not stop progression entirely, and benefits can vary significantly between individuals.
- Disease Progression: Underlying RP continues to evolve, potentially requiring additional interventions over time.
- Side Effects of Supplements: High-dose Vitamin A regimens require monitoring for liver toxicity.
- Psychological Impact: Managing a chronic, progressive condition can lead to anxiety or depression.
Recovery & hospital stay
- Immediate Post-Procedure: For surgical interventions, use of prescribed antibiotic and anti-inflammatory eye drops for several weeks is critical.
- Activity Restrictions: Avoid strenuous activities, heavy lifting, and rubbing the eye as advised by the surgeon.
- Follow-up Appointments: Regular check-ups are essential to monitor healing, device function (if implanted), and manage any complications.
- Long-Term Adaptation: Ongoing engagement with low-vision specialists for training with magnifiers, specialized software, and orientation/mobility training.
- Lifestyle Management: Continued use of UV-protective sunglasses, a balanced diet, and adherence to any recommended supplement regimen.
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Typical hospital stay:
0-2 days
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Expected recovery time:
2-6 weeks for surgical recovery; lifelong management
Frequently Asked Questions
If you are considering retinitis pigmentosa in India, these questions and answers can help you make a confident, informed decision.
Popular choices for retinitis pigmentosa in India include Kamineni Hospital, Tadigadapa, Manipal Hospital Whitefield, Manipal Hospital Goa , known for experienced specialists and advanced surgical infrastructure.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform retinitis pigmentosa. MediFyr helps you compare ophthalmologists and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for retinitis pigmentosa compare across other countries where we have data.
Top hospitals for Retinitis Pigmentosa in India
These partner hospitals in India have dedicated ophthalmology teams and experience managing patients undergoing retinitis pigmentosa.
Panaji, India
79 Doctors
I'd been to a couple of...
I'd been to a couple of doctors for this nagging stomach pain and fatigue, and everyone just said it was stress. Dr. Karunakaran actually listened. He asked a lot of questions I hadn't been asked before and ordered some specific tests. Turns out it was a tricky gallbladder issue that wasn't showing up on the standard scans. He explained it in a way that finally made sense. I had the surgery at MGM last month and feel like myself again.
Ophthalmologists for Retinitis Pigmentosa
Explore experienced ophthalmologists who regularly perform retinitis pigmentosa and provide pre- and post-operative care in India.
- 17 Years Experience
- Ophthalmologist
Manipal Hospital Kharadi
- 18 Years Experience
- Ophthalmologist
Manipal Hospital Ranchi
- 17 Years Experience
- Ophthalmologist
Manipal Hospital Hebbal
- 9 Years Experience
- Ophthalmologist
Manipal Hospital Hebbal
- 11 Years Experience
- Ophthalmologist
Manipal Hospital Mukundapur
- 19 Years Experience
- Ophthalmologist
Manipal Hospital Goa
- 16 Years Experience
- Ophthalmologist
Manipal Hospital Mysore