Learn about Dopamine Responsive Dystonia Treatment in India — how it works, who it is for, recovery timelines, and what to expect before and after surgery. Compare hospitals and doctors experienced in Dopamine Responsive Dystonia and request assistance for cost estimates or appointments.

About Dopamine Responsive Dystonia

Dopamine Responsive Dystonia (DRD), also known as Segawa syndrome, is a rare, inherited neurological movement disorder that typically presents in childhood. While primarily managed neurologically with medication (like levodopa), a pediatric orthopedic surgeon plays a crucial role when musculoskeletal complications arise. The orthopedic procedure involves the surgical correction of fixed deformities, such as severe foot deformities (equinovarus), scoliosis, or hip dislocations, that develop due to prolonged, untreated dystonia. This surgery aims to restore alignment, improve function, and prevent long-term joint damage, working in tandem with ongoing neurological treatment to optimize the child's mobility and quality of life.

Key Highlights

    Corrects fixed musculoskeletal deformities caused by prolonged dystonia.Improves limb alignment, posture, and overall mobility.Works synergistically with neurological medication (levodopa) for comprehensive care.Can prevent progressive joint damage and chronic pain.Tailored to the pediatric skeleton to support normal growth and development.

Who is this surgery for?

  • Development of fixed foot deformities (e.g., clubfoot) unresponsive to bracing.
  • Progressive scoliosis or spinal curvature impacting posture or lung function.
  • Symptomatic hip subluxation or dislocation.
  • Severe, fixed contractures of limbs causing functional impairment.
  • Deformities that persist despite optimal medical management with dopamine therapy.

How to prepare

  • Comprehensive neurological assessment to ensure dopamine therapy is optimized.
  • Detailed orthopedic evaluation with X-rays, CT, or MRI to plan surgery.
  • Pre-operative blood tests and a general physical check-up.
  • Discussion with the family about surgical goals, risks, and recovery expectations.
  • Fasting as instructed by the anesthesiologist, typically 6-8 hours before surgery.

Risks & possible complications

  • General surgical risks: Reaction to anesthesia, bleeding, or infection.
  • Nerve or blood vessel injury near the surgical site.
  • Blood clots (deep vein thrombosis).
  • Incomplete correction or recurrence of the deformity.
  • Delayed bone healing or non-union.
  • Need for additional procedures in the future.

Recovery & hospital stay

  • Initial hospital stay for pain management, monitoring, and cast application.
  • Limb will often be placed in a cast or splint to protect the correction.
  • Strict elevation of the operated limb to reduce swelling.
  • Gradual, supervised physical therapy to regain strength and range of motion.
  • Regular follow-up visits for cast changes, X-rays, and monitoring of healing.
  • Continued coordination with the neurologist to manage the underlying DRD.
  • checked Typical hospital stay: 3-5 days
  • checked Expected recovery time: 6-12 weeks for initial healing; full recovery and rehabilitation may take 6-12 months

Frequently Asked Questions

If you are considering dopamine responsive dystonia in India, these questions and answers can help you make a confident, informed decision.

Procedure cost in other countries

Here is an overview of how the estimated cost, hospital stay, and recovery time for dopamine responsive dystonia compare across other countries where we have data.

Country Estimated cost range Typical stay Recovery time View details
India INR 150 Thousand – 400 Thousand 3-5 days ~ 6-12 weeks for initial healing; full recovery and rehabilitation may take 6-12 months Know More
Turkey TRY 525 Thousand – 1.4 Million 3-5 days ~ 6-12 weeks for initial healing; full recovery and rehabilitation may take 6-12 months Know More
PATIENT REVIEW

Ayaan Brown is a 7-year-old boy...

Ayaan Brown is a 7-year-old boy who loves soccer and playing with his older brother. Over the past year, his parents noticed a subtle but progressive change. His right foot began to turn inward when he walked, and he started tripping more often. By evening, he would complain of his legs feeling 'tight and tired,' and his walk became a stiff, awkward gait. His pediatrician initially thought it was a simple orthopedic issue. Referred to Pediatric Orthopedics, Dr. Evans observed Ayaan's marked morning improvement and evening worsening. Suspecting Dopamine-Responsive Dystonia (DRD), she recommended a diagnostic and therapeutic trial of low-dose Levodopa-carbidopa. Ayaan was nervous about taking medicine every day. Within two days of starting treatment, the change was miraculous. His foot straightened, his gait became smooth, and his evening fatigue vanished. At his one-month follow-up, he ran down the clinic hallway. His parents wept with relief, having feared a lifelong degenerative condition. Ayaan's emotional journey shifted from confusion and frustration about his 'clumsy legs' to pure joy at getting his active life back, now medication-managed but entirely normal.

Pediatric Orthopedics for Dopamine Responsive Dystonia

Explore experienced pediatric orthopedics who regularly perform dopamine responsive dystonia and provide pre- and post-operative care in India.

Dr. Neeraj Gupta
  • 14 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 700
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Ghaziabad, Ghaziabad

OPD-desk synced • Updated
Dr. Prashanth Inna
  • 23 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 850
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Old Airport Road, Bangalore

OPD-desk synced • Updated
Dr. Abhishek Nandi
  • 8 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 1000
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Mukundapur, Kolkata

OPD-desk synced • Updated