About Huntingtons Disease
Key Highlights
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Provides a definitive diagnosis through genetic testing, ending uncertainty.Enables proactive, multidisciplinary management to control symptoms and improve daily function.Offers access to genetic counseling for informed family planning decisions.Coordinates care with specialists in psychiatry, physical therapy, and nutrition for holistic support.Focuses on maintaining quality of life and independence for as long as possible.
Who is this surgery for?
- Presence of characteristic symptoms like chorea (involuntary jerky movements), cognitive decline, or psychiatric changes (e.g., depression, irritability).
- A known family history of Huntington's Disease, especially if predictive testing is desired.
- Unexplained progressive neurological symptoms in an adult where other causes have been ruled out.
- The need for a formal diagnosis to access specialized support services and clinical trials.
- For at-risk individuals seeking pre-symptomatic genetic testing after extensive counseling.
How to prepare
- Compile a detailed personal and family medical history, including any known neurological conditions.
- Undergo pre-test genetic counseling to understand the implications, benefits, and risks of genetic testing.
- Complete a thorough neurological and psychiatric evaluation to assess current symptoms.
- Discuss all current medications and supplements with the neurologist.
- Arrange for emotional and psychological support, as the diagnostic process can be stressful.
Risks & possible complications
- Psychological distress, anxiety, or depression following genetic diagnosis, especially for pre-symptomatic testing.
- Potential for genetic discrimination regarding insurance or employment (legal protections vary).
- Side effects from medications used to manage symptoms (e.g., sedation, nausea, dizziness).
- No cure exists; management focuses on symptoms but cannot halt disease progression.
- Emotional impact on family members and complex dynamics around genetic inheritance.
Recovery & hospital stay
- There is no recovery from the disease itself; care focuses on long-term symptom management and support.
- Regular follow-up appointments with the neurologist are essential to adjust medications and therapies.
- Engagement in physical, occupational, and speech therapy is crucial to maintain function.
- Nutritional planning with a dietitian helps manage weight loss and swallowing difficulties.
- Ongoing psychiatric or psychological support is recommended for both the patient and family caregivers.
- Advance care planning, including legal and financial arrangements, should be discussed early.
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Typical hospital stay: 0 days (outpatient) or 2-5 days for severe symptom management
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Expected recovery time: Ongoing, lifelong management
Frequently Asked Questions
If you are considering huntingtons disease in India, these questions and answers can help you make a confident, informed decision.
Popular choices for huntingtons disease in India include KMC Hospital Mangalore, Manipal Hospital Gurgaon, Manipal Hospital Jayanagar, Manipal Hospital Kharadi, Manipal Hospital Malleshwaram, known for experienced specialists and advanced surgical infrastructure.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform huntingtons disease. MediFyr helps you compare neurologists and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for huntingtons disease compare across other countries where we have data.
| Country | Estimated cost range | Typical stay | Recovery time | View details |
|---|---|---|---|---|
| India | INR 50 Thousand – 200 Thousand | 0 days (outpatient) or 2-5 days for severe symptom management | ~ Ongoing, lifelong management | Know More |
| Turkey | TRY 175 Thousand – 700 Thousand | 0 days (outpatient) or 2-5 days for severe symptom management | ~ Ongoing, lifelong management | Know More |
Top hospitals for Huntingtons Disease in India
These partner hospitals in India have dedicated neurology teams and experience managing patients undergoing huntingtons disease.
Emily Sharma, a 42-year-old senior graphic...
Emily Sharma, a 42-year-old senior graphic designer, had watched her father's devastating decline from Huntington's Disease. For the past two years, she'd been noticing subtle changes: a slight clumsiness dropping her stylus, occasional irritability with colleagues, and a persistent, low-grade anxiety she couldn't shake. When a mild, involuntary twitch in her finger appeared, her fear crystallized. Her neurologist, Dr. Chen, recommended genetic testing to confirm the presence of the HTT gene mutation, explaining it was the only definitive way to know. The procedure itself was a simple blood draw, but the six-week wait for results was agonizing. Emily felt suspended between two lives. The result was positive. The initial wave of grief was profound, mourning the future she had planned. However, knowing definitively allowed her to take control. She connected with a specialized HD clinic, started a tailored exercise regimen, and began financial and advanced care planning. The uncertainty, while painful, has been replaced by a purposeful, if difficult, clarity. She is living with intention, focusing on quality of life and making memories with her family, empowered by knowledge rather than paralyzed by fear.
Neurologists for Huntingtons Disease
Explore experienced neurologists who regularly perform huntingtons disease and provide pre- and post-operative care in India.
- 18 Years Experience
- Neurologist
Miot Hospital Chennai, Chennai
- 46 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 25 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 13 Years Experience
- Neurologist
SIMS Hospital Vadapalani, Chennai
- 13 Years Experience
- Neurologist
SIMS Hospital Vadapalani, Chennai
- 19 Years Experience
- Neurologist
Manipal Hospital Bhubaneswar, Bhubaneshwar
- 26 Years Experience
- Neurologist
Manipal Hospital Bhubaneswar, Bhubaneshwar
- 8 Years Experience
- Neurologist
Kamineni Hospital, Tadigadapa, vijayawada
- 9 Years Experience
- Neurologist
Manipal Hospital Bhubaneswar, Bhubaneshwar
- 5 Years Experience
- Neurologist
Kamineni Hospital, Tadigadapa, vijayawada
- 3 Years Experience
- Neurologist
Kamineni Hospital LB Nagar, Hyderabad
- 32 Years Experience
- Neurologist
Kamineni Hospital LB Nagar, Hyderabad
- 11 Years Experience
- Neurologist
Manipal Hospital Gurgaon, Gurgaon
- 7 Years Experience
- Neurologist
Kamineni Hospital LB Nagar, Hyderabad
- 8 Years Experience
- Neurologist
Manipal Hospital Ghaziabad, Ghaziabad
- 32 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 19 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 15 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 14 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 13 Years Experience
- Neurologist
Metro Hospital, Sector 11, Noida