Learn about Ophthalmoplegic Muscular Dystrophy Treatment in India — how it works, who it is for, recovery timelines, and what to expect before and after surgery. Compare hospitals and doctors experienced in Ophthalmoplegic Muscular Dystrophy and request assistance for cost estimates or appointments.

About Ophthalmoplegic Muscular Dystrophy

Ophthalmoplegic Muscular Dystrophy (OPMD) is a rare, progressive genetic disorder that primarily affects the muscles controlling eye movement (ophthalmoplegia) and can also involve skeletal muscles, leading to weakness and postural issues. While there is no cure for the underlying dystrophy, a Pediatric Orthopedist plays a crucial role in managing its musculoskeletal complications. The orthopedic approach focuses on comprehensive, multi-disciplinary care aimed at preserving function, preventing deformities, and improving quality of life. This involves regular monitoring, non-surgical interventions like physical and occupational therapy, bracing, and, in select cases, surgical procedures such as tendon releases or transfers to correct contractures or stabilize joints. The goal is to maximize mobility, support development, and address the unique orthopedic challenges faced by children with this condition.

Key Highlights

    Focuses on managing musculoskeletal complications to improve daily function and mobility.Employs a personalized, multi-disciplinary care plan involving physiotherapists and other specialists.Aims to prevent or correct joint contractures and skeletal deformities through targeted interventions.Helps maintain postural alignment and can delay the progression of physical limitations.Improves overall quality of life by addressing pain and maximizing independence in activities.

Who is this surgery for?

  • Progressive weakness in limb or trunk muscles leading to functional decline.
  • Development of joint contractures (tightening) that limit range of motion.
  • Significant postural abnormalities, such as scoliosis (curvature of the spine).
  • Gait disturbances or difficulties with walking due to muscle imbalance.
  • Chronic pain or discomfort related to musculoskeletal strain and deformity.
  • Failure to achieve motor milestones or loss of previously acquired motor skills.

How to prepare

  • Comprehensive neurological and orthopedic evaluation to assess muscle strength, joint range, and functional status.
  • Diagnostic imaging such as X-rays or MRI to evaluate bone and joint structure.
  • Pre-operative consultations with a pediatric neurologist, anesthesiologist, and physiotherapist.
  • Nutritional assessment to ensure the child is optimized for healing if surgery is planned.
  • Discussion of the care plan, goals, and realistic expectations with the family and child (age-appropriate).
  • Pre-surgical clearance and management of any other coexisting medical conditions.

Risks & possible complications

  • General anesthesia risks, which require careful consideration in children with neuromuscular disease.
  • Surgical risks include infection, bleeding, or poor wound healing.
  • Potential for nerve or blood vessel injury during surgical procedures.
  • Recurrence of deformity or development of new contractures over time.
  • Complications related to immobility, such as pressure sores or respiratory issues.
  • Limited functional improvement despite intervention, due to the progressive nature of the dystrophy.

Recovery & hospital stay

  • Post-surgery, a short hospital stay is typical for pain management and initial mobilization.
  • Immediate post-operative care involves monitoring for complications and managing pain effectively.
  • A structured and often prolonged physiotherapy program is critical to regain strength and range of motion.
  • Use of casts, splints, or braces to protect surgical corrections and maintain alignment.
  • Gradual return to activities as guided by the orthopedic and therapy team.
  • Long-term, regular follow-up visits are essential to monitor progress and adjust the management plan as the condition evolves.
  • checked Typical hospital stay: 3-7 days
  • checked Expected recovery time: Several weeks to months

Frequently Asked Questions

If you are considering ophthalmoplegic muscular dystrophy in India, these questions and answers can help you make a confident, informed decision.

Procedure cost in other countries

Here is an overview of how the estimated cost, hospital stay, and recovery time for ophthalmoplegic muscular dystrophy compare across other countries where we have data.

Country Estimated cost range Typical stay Recovery time View details
India INR 50 Thousand – 300 Thousand 3-7 days ~ Several weeks to months Know More
Turkey TRY 175 Thousand – 1.05 Million 3-7 days ~ Several weeks to months Know More
PATIENT REVIEW

James Jones is a 14-year-old high...

James Jones is a 14-year-old high school freshman who loves baseball and video games. He was diagnosed with Ophthalmoplegic Muscular Dystrophy (OPMD) at age 10, a condition inherited from his father. Over the last two years, James developed a severe forward head posture and a rigid, hyperextended neck as his neck extensor muscles weakened, a common complication of OPMD. He called it his "turtle neck." It caused constant neck pain, headaches, and made it impossible to look down to read, write, or see the baseball when batting. His pediatric orthopedist, Dr. Chen, recommended a posterior cervical spinal fusion to stabilize his neck, correct the posture, and relieve pain. James was terrified of surgery near his spine. The procedure went smoothly, and he spent two days in the hospital. Recovery involved a neck brace for 8 weeks and gentle physical therapy. The outcome was transformative: his neck was straight, the debilitating pain was gone, and he could finally look down comfortably. Emotionally, he journeyed from frustration and self-consciousness about his posture to profound relief and regained confidence, excited to return to a normal teenage life.

Pediatric Orthopedics for Ophthalmoplegic Muscular Dystrophy

Explore experienced pediatric orthopedics who regularly perform ophthalmoplegic muscular dystrophy and provide pre- and post-operative care in India.

Dr. Neeraj Gupta
  • 14 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 700
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Ghaziabad, Ghaziabad

OPD-desk synced • Updated
Dr. Prashanth Inna
  • 23 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 850
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Old Airport Road, Bangalore

OPD-desk synced • Updated
Dr. Abhishek Nandi
  • 8 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 1000
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Mukundapur, Kolkata

OPD-desk synced • Updated