About Ophthalmoplegic Muscular Dystrophy
Key Highlights
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Focuses on managing musculoskeletal complications to improve daily function and mobility.Employs a personalized, multi-disciplinary care plan involving physiotherapists and other specialists.Aims to prevent or correct joint contractures and skeletal deformities through targeted interventions.Helps maintain postural alignment and can delay the progression of physical limitations.Improves overall quality of life by addressing pain and maximizing independence in activities.
Who is this surgery for?
- Progressive weakness in limb or trunk muscles leading to functional decline.
- Development of joint contractures (tightening) that limit range of motion.
- Significant postural abnormalities, such as scoliosis (curvature of the spine).
- Gait disturbances or difficulties with walking due to muscle imbalance.
- Chronic pain or discomfort related to musculoskeletal strain and deformity.
- Failure to achieve motor milestones or loss of previously acquired motor skills.
How to prepare
- Comprehensive neurological and orthopedic evaluation to assess muscle strength, joint range, and functional status.
- Diagnostic imaging such as X-rays or MRI to evaluate bone and joint structure.
- Pre-operative consultations with a pediatric neurologist, anesthesiologist, and physiotherapist.
- Nutritional assessment to ensure the child is optimized for healing if surgery is planned.
- Discussion of the care plan, goals, and realistic expectations with the family and child (age-appropriate).
- Pre-surgical clearance and management of any other coexisting medical conditions.
Risks & possible complications
- General anesthesia risks, which require careful consideration in children with neuromuscular disease.
- Surgical risks include infection, bleeding, or poor wound healing.
- Potential for nerve or blood vessel injury during surgical procedures.
- Recurrence of deformity or development of new contractures over time.
- Complications related to immobility, such as pressure sores or respiratory issues.
- Limited functional improvement despite intervention, due to the progressive nature of the dystrophy.
Recovery & hospital stay
- Post-surgery, a short hospital stay is typical for pain management and initial mobilization.
- Immediate post-operative care involves monitoring for complications and managing pain effectively.
- A structured and often prolonged physiotherapy program is critical to regain strength and range of motion.
- Use of casts, splints, or braces to protect surgical corrections and maintain alignment.
- Gradual return to activities as guided by the orthopedic and therapy team.
- Long-term, regular follow-up visits are essential to monitor progress and adjust the management plan as the condition evolves.
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Typical hospital stay: 3-7 days
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Expected recovery time: Several weeks to months
Frequently Asked Questions
If you are considering ophthalmoplegic muscular dystrophy in India, these questions and answers can help you make a confident, informed decision.
Top-rated hospitals in India with pediatric orthopedics departments and experienced surgeons are ideal for this procedure. Use MediFyr to compare facilities, reviews, and doctor profiles before you decide.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform ophthalmoplegic muscular dystrophy. MediFyr helps you compare pediatric orthopedics and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for ophthalmoplegic muscular dystrophy compare across other countries where we have data.
James Jones is a 14-year-old high...
James Jones is a 14-year-old high school freshman who loves baseball and video games. He was diagnosed with Ophthalmoplegic Muscular Dystrophy (OPMD) at age 10, a condition inherited from his father. Over the last two years, James developed a severe forward head posture and a rigid, hyperextended neck as his neck extensor muscles weakened, a common complication of OPMD. He called it his "turtle neck." It caused constant neck pain, headaches, and made it impossible to look down to read, write, or see the baseball when batting. His pediatric orthopedist, Dr. Chen, recommended a posterior cervical spinal fusion to stabilize his neck, correct the posture, and relieve pain. James was terrified of surgery near his spine. The procedure went smoothly, and he spent two days in the hospital. Recovery involved a neck brace for 8 weeks and gentle physical therapy. The outcome was transformative: his neck was straight, the debilitating pain was gone, and he could finally look down comfortably. Emotionally, he journeyed from frustration and self-consciousness about his posture to profound relief and regained confidence, excited to return to a normal teenage life.
Pediatric Orthopedics for Ophthalmoplegic Muscular Dystrophy
Explore experienced pediatric orthopedics who regularly perform ophthalmoplegic muscular dystrophy and provide pre- and post-operative care in India.
- 14 Years Experience
- Pediatric Orthopedics
Manipal Hospital Ghaziabad, Ghaziabad
- 23 Years Experience
- Pediatric Orthopedics
Manipal Hospital Old Airport Road, Bangalore
- 8 Years Experience
- Pediatric Orthopedics
Manipal Hospital Mukundapur, Kolkata