Refractory Epilepsy Treatment in India

Saanvi Ali is a 28-year-old graphic...

Saanvi Ali is a 28-year-old graphic designer whose life was upended by focal aware seizures that began in her late teens. Initially brief episodes of déjà vu and a rising stomach sensation, they progressed to disruptive moments where she would stare blankly and fumble objects, sometimes followed by confusion. Despite trying four different anti-seizure medications in various combinations, the seizures persisted 2-3 times a week, jeopardizing her job and independence. Her neurologist, Dr. Chen, recommended an evaluation for refractory epilepsy, explaining that her seizures were not controlled by medication and that further testing could identify if she was a candidate for surgery or advanced devices like a neurostimulator. Saanvi underwent a week-long video-EEG monitoring stay in the hospital, which was emotionally draining but pinpointed the seizure focus in her left temporal lobe. Following this, she had a responsive neurostimulation (RNS) device implanted. The recovery involved initial scalp tenderness and activity restrictions, but within a year, her seizure frequency dropped by over 70%. Emotionally, Saanvi journeyed from a place of frustration and fear about her unpredictable future to one of cautious optimism and regained control. She still manages her condition, but the dramatic reduction in seizures has allowed her to return to full-time work and rebuild her confidence.