Learn about Torsion Dystonia Treatment in India — how it works, who it is for, recovery timelines, and what to expect before and after surgery. Compare hospitals and doctors experienced in Torsion Dystonia and request assistance for cost estimates or appointments.

About Torsion Dystonia

Torsion dystonia, also known as dystonia musculorum deformans, is a complex neurological movement disorder characterized by sustained, involuntary muscle contractions that cause twisting, repetitive movements, and abnormal postures. In pediatric orthopedics, the focus is on managing the severe musculoskeletal deformities and functional limitations that result from this condition, particularly when it affects the spine, limbs, and gait. Treatment is highly individualized and may involve a multidisciplinary approach. Surgical interventions, such as selective dorsal rhizotomy or deep brain stimulation, are considered for severe, medication-resistant cases to reduce abnormal muscle signaling and improve posture and mobility. The goal is to enhance the child's quality of life, prevent contractures, and support developmental milestones.

Key Highlights

    Addresses severe, medication-resistant muscle contractions and abnormal postures.Can significantly improve mobility, posture, and functional independence.Aims to prevent long-term joint contractures and skeletal deformities.Often part of a comprehensive, multidisciplinary care plan.Tailored to the specific type and distribution of dystonia in the child.

Who is this surgery for?

  • Diagnosis of primary or secondary torsion dystonia (e.g., DYT1 gene mutation).
  • Severe, disabling symptoms not adequately controlled with medications (e.g., anticholinergics, muscle relaxants) or botulinum toxin injections.
  • Progressive deformity leading to pain, functional impairment, or risk of contractures.
  • Significant interference with activities of daily living, walking, or sitting.
  • Failure of conservative management including physical and occupational therapy.

How to prepare

  • Comprehensive neurological and orthopedic evaluation to confirm diagnosis and surgical candidacy.
  • Advanced imaging (MRI of brain/spine) and possibly genetic testing.
  • Detailed pre-anesthetic check-up and blood tests.
  • Multidisciplinary team consultation (neurologist, neurosurgeon, physiotherapist).
  • Pre-operative physiotherapy to optimize muscle condition.
  • Discussion with family about goals, expectations, and the recovery process.

Risks & possible complications

  • General surgical risks: infection, bleeding, anesthesia complications.
  • Neurological risks: weakness, sensory changes, or new movement abnormalities.
  • Incomplete relief of dystonic symptoms or recurrence over time.
  • Hardware-related issues (for procedures like deep brain stimulation).
  • Need for additional procedures or adjustments.
  • Risks associated with prolonged immobilization or rehabilitation.

Recovery & hospital stay

  • Initial hospital stay for monitoring neurological status and pain management.
  • Early mobilization with assistance from physiotherapists.
  • Intensive, long-term physical and occupational therapy is crucial for maximizing outcomes.
  • Gradual return to activities as guided by the medical team.
  • Regular follow-up appointments to monitor progress and adjust treatment (e.g., stimulator settings).
  • Family education and support for home-based exercises and care.
  • checked Typical hospital stay: 5-10 days
  • checked Expected recovery time: 6-12 months for full functional recovery

Frequently Asked Questions

If you are considering torsion dystonia in India, these questions and answers can help you make a confident, informed decision.

Procedure cost in other countries

Here is an overview of how the estimated cost, hospital stay, and recovery time for torsion dystonia compare across other countries where we have data.

Country Estimated cost range Typical stay Recovery time View details
India INR 350 Thousand – 1.2 Million 5-10 days ~ 6-12 months for full functional recovery Know More
Turkey TRY 1.23 Million – 4.2 Million 5-10 days ~ 6-12 months for full functional recovery Know More
PATIENT REVIEW

Priya Ali is a bright 8-year-old...

Priya Ali is a bright 8-year-old girl who loves drawing and dancing. Her parents first noticed a slight inward twist in her right foot when she was 6, which they initially thought was a clumsy phase. Over two years, the twisting became more pronounced and painful, causing her to trip frequently and withdraw from her beloved dance classes. Her handwriting also became cramped and difficult. After seeing a pediatrician and a neurologist, she was diagnosed with idiopathic torsion dystonia affecting her right foot and hand. Her pediatric orthopedic surgeon, Dr. Mehta, recommended a selective peripheral denervation surgery, explaining it would carefully interrupt the overactive nerve signals causing the muscle spasms. Priya was scared of the 'big sleep' but the child-life specialist helped her understand with a doll. The surgery lasted three hours. Recovery involved two days in the hospital managing pain, followed by three weeks in a soft cast and intensive physical therapy to retrain her muscles. Six months post-op, the painful twisting is 90% resolved. She can walk smoothly and has returned to dance, though she still does daily stretches. Emotionally, she transformed from a frustrated, self-conscious child who hid her foot to a confident girl who proudly shows her 'special surgery scar' and draws pictures for her doctors.

Pediatric Orthopedics for Torsion Dystonia

Explore experienced pediatric orthopedics who regularly perform torsion dystonia and provide pre- and post-operative care in India.

Dr. Neeraj Gupta
  • 14 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 700
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Ghaziabad, Ghaziabad

OPD-desk synced • Updated
Dr. Prashanth Inna
  • 23 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 850
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Old Airport Road, Bangalore

OPD-desk synced • Updated
Dr. Abhishek Nandi
  • 8 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 1000
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Mukundapur, Kolkata

OPD-desk synced • Updated