Tuberous Sclerosis Treatment in India – Best Hospitals & Doctors

Learn about Tuberous Sclerosis Treatment in India — how it works, who it is for, recovery timelines, and what to expect before and after surgery. Compare hospitals and doctors experienced in Tuberous Sclerosis and request assistance for cost estimates or appointments.

Partner Hospitals

0 partner in India for this surgery

Specialist Doctors

3 Surgeons linked to this surgery

Treatment Cost

USD 163 – USD 435

About Tuberous Sclerosis

Tuberous Sclerosis (TS) is not a procedure but a rare genetic disorder. Genetic medicine plays a crucial role in its management through comprehensive evaluation, diagnosis, and personalized care planning. This involves genetic counseling and testing to identify mutations in the TSC1 or TSC2 genes, which are the primary causes of the condition. The genetic medicine approach focuses on confirming the diagnosis, assessing familial risk, and guiding a multi-disciplinary treatment strategy to manage symptoms like seizures, skin abnormalities, and tumors in the brain, kidneys, heart, and lungs. This proactive, gene-based management helps in early intervention, surveillance, and improving long-term outcomes for patients and their families.

Key Highlights

Provides a definitive molecular diagnosis through genetic testing.Enables accurate assessment of familial inheritance and recurrence risks.Guides personalized, multi-disciplinary management and surveillance plans.Facilitates early intervention for potential complications.Offers crucial genetic counseling for patients and family members.

Who is this surgery for?

Clinical suspicion of Tuberous Sclerosis based on major or minor diagnostic criteria (e.g., facial angiofibromas, hypomelanotic macules, seizures).
Family history of Tuberous Sclerosis or related symptoms.
Unexplained findings such as cardiac rhabdomyomas in a fetus or infant.
To confirm diagnosis for proper access to specialized care and monitoring programs.
For prenatal or preimplantation genetic diagnosis in families with a known mutation.

How to prepare

Referral from a neurologist, dermatologist, or pediatrician based on clinical findings.
Detailed collection of personal and family medical history.
Pre-test genetic counseling to discuss the process, implications, and potential outcomes.
Provision of a blood or saliva sample for DNA analysis.
Completion of necessary consent forms for genetic testing.

Risks & possible complications

Psychological impact of receiving a genetic diagnosis for a lifelong condition.
Potential for uncertain or variant of unknown significance (VUS) results, which may not provide clear answers.
Privacy concerns related to genetic information.
Implications for other family members, which may cause familial stress.
There are no physical risks from the blood draw or saliva collection itself.

Recovery & hospital stay

No physical recovery is needed from the genetic test sample collection.
Post-test genetic counseling is essential to discuss results, their meaning, and next steps.
Development of a long-term, personalized management plan with a multi-specialist team.
Initiation of regular surveillance (e.g., brain, kidney, heart imaging) as recommended.
Ongoing support and counseling to address emotional and social aspects of living with a genetic disorder.

Typical hospital stay: 0 days (outpatient)
Expected recovery time: Not applicable

Frequently Asked Questions

If you are considering tuberous sclerosis in India, these questions and answers can help you make a confident, informed decision.

＋ − Which hospitals are best for tuberous sclerosis in India?

Top-rated hospitals in India with genetic medicine departments and experienced surgeons are ideal for this procedure. Use MediFyr to compare facilities, reviews, and doctor profiles before you decide.

＋ − How do I choose the right doctor for tuberous sclerosis?

Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform tuberous sclerosis. MediFyr helps you compare genetic medicines and book consultations online.

＋ − What factors affect the cost of tuberous sclerosis?

The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.

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Procedure cost in other countries

Here is an overview of how the estimated cost, hospital stay, and recovery time for tuberous sclerosis compare across other countries where we have data.

Country	Estimated cost range	Typical stay	Recovery time	View details
India	USD 163 – USD 435	0 days (outpatient)	~ Not applicable	Know More
Turkey	USD 1,208 – USD 3,221	0 days (outpatient)	~ Not applicable	Know More

PATIENT REVIEW

As a 72-year-old retired botanist with...

As a 72-year-old retired botanist with unexplained neurological decline, I was misdiagnosed for years until Dr. Grace Swarna Priya identified my rare ATXN2 gene mutation. Her personalized management plan at MIOT Hospital has slowed my progression remarkably, I can now enjoy gardening again with adapted tools.