Myoclonic Dystonia Treatment in Turkey
About Myoclonic Dystonia
Key Highlights
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Targeted approach for a complex, combined movement disorder.Personalized treatment plans combining medication and advanced therapies.Focus on improving motor control and reducing disruptive involuntary movements.Can significantly enhance daily functioning and quality of life.Involves a thorough diagnostic workup to rule out other conditions.
Who is this surgery for?
- Presence of both rapid, shock-like muscle jerks (myoclonus) and sustained, abnormal postures (dystonia).
- Symptoms often worsen with voluntary action or stress.
- Family history suggestive of inherited myoclonic dystonia (e.g., DYT11, DYT15).
- Inadequate response to initial, single-therapy treatments for myoclonus or dystonia alone.
- Symptoms causing significant functional impairment, pain, or social embarrassment.
How to prepare
- Detailed neurological examination and review of full medical and family history.
- Possible discontinuation of certain medications as advised by the neurologist.
- For diagnostic tests like EMG: avoid lotions/oils on skin and inform about blood thinners.
- For potential DBS surgery: extensive pre-surgical evaluations including brain MRI and psychological assessment.
- Discussion of treatment goals, expectations, and all available therapeutic options.
Risks & possible complications
- Medication side effects (drowsiness, dry mouth, dizziness, potential for dependence).
- For DBS surgery: risks include infection, bleeding, stroke, or hardware-related complications.
- Possible suboptimal control of symptoms requiring treatment adjustments.
- Rarely, symptoms may temporarily worsen before improving.
- Need for ongoing medication management and potential dose adjustments over time.
Recovery & hospital stay
- Medication-based management requires regular follow-ups to monitor efficacy and side effects.
- After DBS surgery: initial hospital stay for monitoring, followed by a period of healing.
- DBS device programming sessions begin weeks after surgery and continue periodically to optimize settings.
- Gradual resumption of daily activities as tolerated, with guidance from the healthcare team.
- Long-term commitment to neurological follow-up for condition management.
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Typical hospital stay:
0-3 days
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Expected recovery time:
Ongoing management; 4-6 weeks for post-surgical stabilization
Frequently Asked Questions
If you are considering myoclonic dystonia in Turkey, these questions and answers can help you make a confident, informed decision.
Popular choices for myoclonic dystonia in Turkey include Liv Hospital Ankara, Istinye Üniversitesi Hastanesi Liv, Medical Park Gaziosmanpaşa, VM Medical Park Pendik Hastanesi, Medical Park Bahçelievler, known for experienced specialists and advanced surgical infrastructure.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform myoclonic dystonia. MediFyr helps you compare neurologists and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for myoclonic dystonia compare across other countries where we have data.
Top hospitals for Myoclonic Dystonia in Turkey
These partner hospitals in Turkey have dedicated neurology teams and experience managing patients undergoing myoclonic dystonia.
Instabul, Turkey
140 Doctors
Aditya Kumar, a 28-year-old software engineer...
Aditya Kumar, a 28-year-old software engineer from Bangalore, had always been a talented classical tabla player. Over the past three years, he developed sudden, violent jerks in his right arm and shoulder, especially when he tried to play music or type code. The movements were embarrassing and made his passion and profession nearly impossible. After seeing a general physician and a rheumatologist, he was referred to a neurologist. The neurologist diagnosed him with Myoclonic Dystonia after a detailed clinical exam and genetic testing confirmed a mutation in the SGCE gene. The doctor recommended a trial of deep brain stimulation (DBS) surgery, as Aditya's symptoms were severe and poorly controlled by medications like clonazepam, which made him too drowsy to work. The treatment experience was daunting; the idea of brain surgery was terrifying. However, the surgical team was supportive. After the DBS system was implanted and programmed, Aditya spent a week in the hospital. In the months of recovery and fine-tuning that followed, the jerks reduced by over 80%. He can now play the tabla again, though with some caution, and his typing speed has returned. Emotionally, he journeyed from a state of despair and identity loss, feeling like a shadow of his former self, to one of cautious optimism and regained confidence. He still has bad days, but he feels back in control of his life.