Rasmussen Syndrome Treatment in Turkey
About Rasmussen Syndrome
Key Highlights
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Provides a definitive diagnosis for a complex and rare neurological condition.Enables a structured, multi-modal treatment plan to manage seizures and inflammation.Can lead to significant seizure reduction, especially when surgical options like hemispherectomy are considered for drug-resistant cases.Involves a specialized team approach led by a neurologist for comprehensive care.
Who is this surgery for?
- Frequent, focal motor seizures (epilepsia partialis continua) that are difficult to control with medication.
- Progressive neurological deficits, such as weakness (hemiparesis) or cognitive decline, localized to one side of the body.
- MRI findings showing progressive atrophy or inflammation confined to one cerebral hemisphere.
- EEG results indicating persistent, unilateral brain hemisphere dysfunction.
- Onset typically in childhood, though adult-onset cases are rarely reported.
How to prepare
- Comprehensive neurological examination and detailed history of seizure frequency and type.
- Long-term video-EEG monitoring to capture and localize seizure activity.
- High-resolution MRI of the brain to assess for unilateral atrophy or inflammation.
- Neuropsychological testing to evaluate cognitive function and baseline abilities.
- Discussion with a multidisciplinary team, including epileptologists and neurosurgeons, to plan the treatment pathway.
Risks & possible complications
- Progression of the disease leading to permanent neurological deficits like hemiplegia, vision loss, or speech impairment.
- Cognitive and developmental regression despite treatment.
- Side effects from long-term use of anti-epileptic drugs or immunosuppressive therapies.
- Risks associated with surgical interventions (if required), including infection, bleeding, or further neurological impairment.
- Psychological and social impact on the patient and family due to the chronic nature of the condition.
Recovery & hospital stay
- Recovery is a long-term process focused on managing the chronic condition, not a post-procedure event.
- Involves careful titration of medications to control seizures while minimizing side effects.
- Regular follow-up with the neurologist for clinical assessments and repeat EEG/MRI scans.
- Intensive physical, occupational, and speech therapy to maximize function and adapt to any neurological deficits.
- For patients undergoing hemispherectomy surgery, recovery involves a specialized inpatient rehabilitation program lasting several weeks to months.
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Typical hospital stay:
Varies widely (0 for diagnosis; 2-4 weeks for surgical management)
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Expected recovery time:
Ongoing chronic management; surgical recovery 3-6 months
Frequently Asked Questions
If you are considering rasmussen syndrome in Turkey, these questions and answers can help you make a confident, informed decision.
Popular choices for rasmussen syndrome in Turkey include Istinye Üniversitesi Hastanesi Liv, Liv Hospital Bahçeşehir, Liv Hospital Ankara, known for experienced specialists and advanced surgical infrastructure.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform rasmussen syndrome. MediFyr helps you compare neurologists and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for rasmussen syndrome compare across other countries where we have data.
| Country | Estimated cost range | Typical stay | Recovery time | View details |
|---|---|---|---|---|
| India | USD 1,652 – USD 8,809 | Varies widely (0 for diagnosis; 2-4 weeks for surgical management) | ~ Ongoing chronic management; surgical recovery 3-6 months | Know More |
| Turkey | USD 12,293 – USD 65,565 | Varies widely (0 for diagnosis; 2-4 weeks for surgical management) | ~ Ongoing chronic management; surgical recovery 3-6 months | Know More |
Top hospitals for Rasmussen Syndrome in Turkey
These partner hospitals in Turkey have dedicated neurology teams and experience managing patients undergoing rasmussen syndrome.
Istanbul, Turkey
140 Doctors
Krishna Saxena, a 12-year-old boy from...
Krishna Saxena, a 12-year-old boy from a close-knit family in Mumbai, was a bright and active student who loved cricket. His parents first noticed subtle changes when he was 9, occasional clumsiness, dropping his bat, and a brief, uncharacteristic stare. Over three years, these episodes evolved into severe, debilitating seizures affecting the left side of his body, paralyzing his arm and leg for hours afterward. Despite trying seven different anti-epileptic drugs, the seizures worsened, and MRI scans revealed progressive atrophy of the right hemisphere of his brain. His neurologist, Dr. Iyer, explained that Krishna had Rasmussen's encephalitis, a rare, inflammatory disease attacking one brain hemisphere. The only curative option was a functional hemispherectomy, a disconnection surgery to isolate the diseased right hemisphere and stop the seizures. The family was terrified at the prospect of such a major brain surgery. The 10-hour procedure was successful. After a challenging month in the hospital, Krishna began intensive rehabilitation. He regained the ability to walk with a slight limp, and his speech and cognition, managed by his healthy left hemisphere, remained sharp. While his left hand has limited function, he has been seizure-free for 18 months. The emotional journey was harrowing, his parents grappled with guilt and fear of losing their son's spark. Post-surgery, seeing Krishna smile, return to school with accommodations, and cheer for his cricket team again has filled them with profound relief and hope for his future.