About Benign Hereditary Chorea
Key Highlights
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Accurate diagnosis differentiates this non-progressive condition from more serious neurodegenerative disorders.Genetic testing provides definitive confirmation and aids in family planning through genetic counseling.Management is supportive and can significantly improve quality of life and functional ability.The condition is 'benign,' meaning it does not typically shorten life expectancy or cause intellectual disability.Multidisciplinary care from neurologists, therapists, and counselors offers comprehensive support.
Who is this surgery for?
- Onset of persistent, involuntary, dance-like movements (chorea) in childhood or early adolescence.
- A positive family history of similar movement disorders, suggesting an autosomal dominant inheritance pattern.
- Need to rule out other causes of chorea, such as Huntington's disease, Sydenham's chorea, or drug-induced movements.
- Presence of non-progressive motor symptoms without associated cognitive decline or psychiatric features.
- Occurrence of associated conditions like hypothyroidism or lung disease, which can be linked to NKX2-1 gene mutations.
How to prepare
- Compile a detailed personal and multi-generational family medical history.
- Bring any previous medical records, imaging studies (like MRI), or test results to the neurology consultation.
- Be prepared for a thorough neurological examination to assess movement, coordination, and reflexes.
- Discuss the possibility and implications of genetic testing, including psychological preparation for the results.
- For children, preparation involves age-appropriate explanations about the doctor's visit and tests.
Risks & possible complications
- Psychological impact of receiving a genetic diagnosis for oneself and family members.
- Potential side effects from medications used for symptom management, such as sedation, depression, or parkinsonism.
- Risks associated with specific tests (e.g., very low risk from blood draw for genetic testing).
- Anxiety or uncertainty during the diagnostic process while ruling out other conditions.
- Social or insurance-related implications of having a genetic diagnosis on record (genetic discrimination).
Recovery & hospital stay
- Recovery is not from a procedure but involves long-term management; there is no 'post-operative' phase.
- Regular follow-up with the neurologist is essential to monitor symptoms and adjust medications.
- Engagement in physical and occupational therapy can help maintain motor function and adapt daily activities.
- Genetic counseling sessions are recommended for the patient and family to understand inheritance patterns.
- Implementing a consistent daily routine and a safe home environment can help manage chorea and prevent injury.
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Typical hospital stay: 0 days (outpatient management)
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Expected recovery time: Lifelong management (condition is chronic but non-progressive)
Frequently Asked Questions
If you are considering benign hereditary chorea in India, these questions and answers can help you make a confident, informed decision.
Popular choices for benign hereditary chorea in India include KMC Hospital Mangalore, Manipal Hospital Gurgaon, Manipal Hospital Jayanagar, Manipal Hospital Kharadi, Manipal Hospital Malleshwaram, known for experienced specialists and advanced surgical infrastructure.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform benign hereditary chorea. MediFyr helps you compare neurologists and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for benign hereditary chorea compare across other countries where we have data.
| Country | Estimated cost range | Typical stay | Recovery time | View details |
|---|---|---|---|---|
| India | INR 5 Thousand – 40 Thousand | 0 days (outpatient management) | ~ Lifelong management (condition is chronic but non-progressive) | Know More |
| Turkey | TRY 17.5 Thousand – 140 Thousand | 0 days (outpatient management) | ~ Lifelong management (condition is chronic but non-progressive) | Know More |
Top hospitals for Benign Hereditary Chorea in India
These partner hospitals in India have dedicated neurology teams and experience managing patients undergoing benign hereditary chorea.
Priya Jones, a 35-year-old graphic designer...
Priya Jones, a 35-year-old graphic designer and mother of a 3-year-old in London, noticed mild, dance-like movements in her hands after her pregnancy. They worsened with stress. Her mother, originally from Jamaica, mentioned a family history of 'nervous shakes'. Worried she might pass on a serious illness, Priya saw a neurologist. Based on the non-progressive nature and family history, the doctor suggested genetic testing for BHC to provide clarity for her family planning. The wait for results was filled with guilt and anxiety about her daughter's future. The diagnosis of Benign Hereditary Chorea, while lifelong, was a profound relief, it was not neurodegenerative and her daughter had a 50/50 chance of inheriting only these manageable movements. Priya uses mindfulness to manage stress-induced flares. Her emotional path evolved from fear and isolation to empowerment. She is now pregnant with her second child, armed with knowledge and a care plan.
Neurologists for Benign Hereditary Chorea
Explore experienced neurologists who regularly perform benign hereditary chorea and provide pre- and post-operative care in India.
- 18 Years Experience
- Neurologist
Miot Hospital Chennai, Chennai
- 46 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 25 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 13 Years Experience
- Neurologist
SIMS Hospital Vadapalani, Chennai
- 13 Years Experience
- Neurologist
SIMS Hospital Vadapalani, Chennai
- 19 Years Experience
- Neurologist
Manipal Hospital Bhubaneswar, Bhubaneshwar
- 26 Years Experience
- Neurologist
Manipal Hospital Bhubaneswar, Bhubaneshwar
- 8 Years Experience
- Neurologist
Kamineni Hospital, Tadigadapa, vijayawada
- 9 Years Experience
- Neurologist
Manipal Hospital Bhubaneswar, Bhubaneshwar
- 5 Years Experience
- Neurologist
Kamineni Hospital, Tadigadapa, vijayawada
- 3 Years Experience
- Neurologist
Kamineni Hospital LB Nagar, Hyderabad
- 32 Years Experience
- Neurologist
Kamineni Hospital LB Nagar, Hyderabad
- 11 Years Experience
- Neurologist
Manipal Hospital Gurgaon, Gurgaon
- 7 Years Experience
- Neurologist
Kamineni Hospital LB Nagar, Hyderabad
- 8 Years Experience
- Neurologist
Manipal Hospital Ghaziabad, Ghaziabad
- 32 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 19 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 15 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 14 Years Experience
- Neurologist
Manipal Hospital Old Airport Road, Bangalore
- 13 Years Experience
- Neurologist
Metro Hospital, Sector 11, Noida