Learn about Benign Hereditary Chorea Treatment in Turkey — how it works, who it is for, recovery timelines, and what to expect before and after surgery. Compare hospitals and doctors experienced in Benign Hereditary Chorea and request assistance for cost estimates or appointments.

About Benign Hereditary Chorea

Benign Hereditary Chorea (BHC) is not a medical procedure but a rare, inherited neurological movement disorder characterized by non-progressive, choreiform (dance-like) movements that typically begin in childhood. Diagnosis and management are performed by a neurologist and involve a comprehensive evaluation to distinguish BHC from other conditions like Huntington's disease. The diagnostic process includes a detailed family history, neurological examination, and often genetic testing to identify mutations in the NKX2-1 (TITF1) gene. Management is primarily supportive, focusing on symptom control through medications like tetrabenazine or neuroleptics, physical therapy, and genetic counseling. While there is no cure, the condition is 'benign' as it does not typically affect lifespan or cause cognitive decline, allowing individuals to lead full lives with appropriate care.

Key Highlights

    Accurate diagnosis differentiates this non-progressive condition from more serious neurodegenerative disorders.Genetic testing provides definitive confirmation and aids in family planning through genetic counseling.Management is supportive and can significantly improve quality of life and functional ability.The condition is 'benign,' meaning it does not typically shorten life expectancy or cause intellectual disability.Multidisciplinary care from neurologists, therapists, and counselors offers comprehensive support.

Who is this surgery for?

  • Onset of persistent, involuntary, dance-like movements (chorea) in childhood or early adolescence.
  • A positive family history of similar movement disorders, suggesting an autosomal dominant inheritance pattern.
  • Need to rule out other causes of chorea, such as Huntington's disease, Sydenham's chorea, or drug-induced movements.
  • Presence of non-progressive motor symptoms without associated cognitive decline or psychiatric features.
  • Occurrence of associated conditions like hypothyroidism or lung disease, which can be linked to NKX2-1 gene mutations.

How to prepare

  • Compile a detailed personal and multi-generational family medical history.
  • Bring any previous medical records, imaging studies (like MRI), or test results to the neurology consultation.
  • Be prepared for a thorough neurological examination to assess movement, coordination, and reflexes.
  • Discuss the possibility and implications of genetic testing, including psychological preparation for the results.
  • For children, preparation involves age-appropriate explanations about the doctor's visit and tests.

Risks & possible complications

  • Psychological impact of receiving a genetic diagnosis for oneself and family members.
  • Potential side effects from medications used for symptom management, such as sedation, depression, or parkinsonism.
  • Risks associated with specific tests (e.g., very low risk from blood draw for genetic testing).
  • Anxiety or uncertainty during the diagnostic process while ruling out other conditions.
  • Social or insurance-related implications of having a genetic diagnosis on record (genetic discrimination).

Recovery & hospital stay

  • Recovery is not from a procedure but involves long-term management; there is no 'post-operative' phase.
  • Regular follow-up with the neurologist is essential to monitor symptoms and adjust medications.
  • Engagement in physical and occupational therapy can help maintain motor function and adapt daily activities.
  • Genetic counseling sessions are recommended for the patient and family to understand inheritance patterns.
  • Implementing a consistent daily routine and a safe home environment can help manage chorea and prevent injury.
  • checked Typical hospital stay: 0 days (outpatient management)
  • checked Expected recovery time: Lifelong management (condition is chronic but non-progressive)

Frequently Asked Questions

If you are considering benign hereditary chorea in Turkey, these questions and answers can help you make a confident, informed decision.

Procedure cost in other countries

Here is an overview of how the estimated cost, hospital stay, and recovery time for benign hereditary chorea compare across other countries where we have data.

Country Estimated cost range Typical stay Recovery time View details
India USD 54 – USD 435 0 days (outpatient management) ~ Lifelong management (condition is chronic but non-progressive) Know More
Turkey USD 403 – USD 3,221 0 days (outpatient management) ~ Lifelong management (condition is chronic but non-progressive) Know More

Top hospitals for Benign Hereditary Chorea in Turkey

These partner hospitals in Turkey have dedicated neurology teams and experience managing patients undergoing benign hereditary chorea.

Liv Hospital Ankara

  • IconIstanbul, Turkey
  • Icon140 Doctors

Liv Hospital Bahçeşehir

  • IconIstanbul, Turkey
  • Icon38 Doctors
PATIENT REVIEW

Had my gallbladder out last week....

Had my gallbladder out last week. The surgery itself was fine, but the first two days after were rough. Dr. Madhumitha was really on top of my pain meds, adjusting them a few times until it was manageable. She checked on me every morning and evening at MGM, which helped a lot. I'm home now and the recovery is going okay, just taking it slow.