Learn about Miyoshi Myopathy Treatment in India — how it works, who it is for, recovery timelines, and what to expect before and after surgery. Compare hospitals and doctors experienced in Miyoshi Myopathy and request assistance for cost estimates or appointments.

About Miyoshi Myopathy

Miyoshi Myopathy is a rare, inherited muscular dystrophy characterized by progressive weakness and atrophy, primarily affecting the calf muscles and later spreading to other muscle groups. In pediatric orthopedics, management focuses on a multidisciplinary approach to preserve mobility, prevent contractures, and address skeletal complications. This involves regular monitoring, physical therapy, orthotic support (like ankle-foot orthoses), and, in select cases, surgical interventions such as tendon lengthening or spinal fusion for scoliosis. The goal is to optimize function, delay disability, and improve quality of life through tailored, proactive care that adapts as the child grows.

Key Highlights

    Multidisciplinary care approach involving pediatric orthopedics, neurology, and physical therapy.Focus on preserving mobility and delaying the progression of muscle weakness.Customized orthotic support to improve gait and prevent falls.Proactive management of contractures and skeletal deformities like scoliosis.Aims to enhance independence and quality of life for the child.

Who is this surgery for?

  • Diagnosis of Miyoshi Myopathy with progressive muscle weakness, especially in the lower limbs.
  • Development of joint contractures (e.g., ankle equinus) limiting range of motion.
  • Significant gait abnormalities or frequent falls due to muscle weakness.
  • Emergence of scoliosis or other spinal deformities affecting posture or function.
  • Failure of conservative measures (like physical therapy) to maintain functional mobility.

How to prepare

  • Comprehensive neurological and orthopedic evaluation to assess muscle strength, contractures, and skeletal alignment.
  • Pre-operative imaging such as X-rays or MRI to evaluate bone and joint status.
  • Consultation with a pediatric neurologist and genetic counselor for holistic care planning.
  • Pre-operative physical therapy to optimize muscle condition and educate on post-procedure exercises.
  • Nutritional assessment to ensure the child is in optimal health for procedure tolerance.

Risks & possible complications

  • General anesthesia risks, including respiratory complications.
  • Surgical site infection or delayed wound healing.
  • Bleeding or hematoma formation.
  • Nerve or blood vessel injury during the procedure.
  • Incomplete correction of deformity or recurrence over time.
  • Post-operative pain and stiffness requiring intensive rehabilitation.

Recovery & hospital stay

  • Initial hospital stay for pain management, wound care, and monitoring of vital signs.
  • Use of casts, braces, or orthotics to protect surgical corrections and support healing.
  • Gradual, supervised physical therapy starting soon after surgery to maintain joint mobility and muscle strength.
  • Regular follow-up visits to monitor healing, adjust orthotics, and assess functional progress.
  • Long-term commitment to rehabilitation exercises and adaptive strategies to manage daily activities.
  • checked Typical hospital stay: 3-7 days
  • checked Expected recovery time: 6-12 months for full functional adaptation

Frequently Asked Questions

If you are considering miyoshi myopathy in India, these questions and answers can help you make a confident, informed decision.

Procedure cost in other countries

Here is an overview of how the estimated cost, hospital stay, and recovery time for miyoshi myopathy compare across other countries where we have data.

Country Estimated cost range Typical stay Recovery time View details
India INR 150 Thousand – 500 Thousand 3-7 days ~ 6-12 months for full functional adaptation Know More
Turkey TRY 525 Thousand – 1.75 Million 3-7 days ~ 6-12 months for full functional adaptation Know More
PATIENT REVIEW

Pooja Garcia is a 13-year-old, vibrant...

Pooja Garcia is a 13-year-old, vibrant girl who loves art and dreams of becoming an animator. Diagnosed with Miyoshi Myopathy at age 10, she comes from a close-knit family. Over the past two years, Pooja has experienced progressive weakness in her calf muscles, making it difficult to walk long distances, run, or keep up with her friends. She frequently trips and has developed a noticeable toe-walking gait to compensate. Her pediatric orthopedist, Dr. Evans, recommended bilateral Achilles tendon lengthening surgery to correct the equinus contractures, improve her foot positioning, and delay the need for ankle-foot orthoses (AFOs). The procedure went smoothly. Pooja was nervous but found comfort in the child-life specialist who used drawings to explain the surgery. Post-surgery, she spent two weeks in non-weight-bearing casts, which was frustrating, followed by a month in walking boots with intensive physical therapy. The recovery was challenging and painful at times, but after three months, Pooja's gait was significantly improved. She no longer toe-walks, trips far less often, and feels more stable. Emotionally, she felt isolated and 'different' before the surgery, mourning the loss of simple activities. Now, while she knows her condition is progressive, she feels empowered by having taken a proactive step. The surgery gave her a renewed sense of confidence and control, allowing her to focus more on her art and less on her next step.

Pediatric Orthopedics for Miyoshi Myopathy

Explore experienced pediatric orthopedics who regularly perform miyoshi myopathy and provide pre- and post-operative care in India.

Dr. Neeraj Gupta
  • 14 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 700
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Ghaziabad, Ghaziabad

OPD-desk synced • Updated
Dr. Prashanth Inna
  • 23 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 850
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Old Airport Road, Bangalore

OPD-desk synced • Updated
Dr. Abhishek Nandi
  • 8 Years Experience
  • Pediatric Orthopedics
Speaks: English, Hindi
Consult Charge ₹ 1000
Available Today
December: 08:00 AM - 08:00 PM

MediFyr Plus Manipal Hospital Mukundapur, Kolkata

OPD-desk synced • Updated