Miyoshi Myopathy Treatment in Turkey
About Miyoshi Myopathy
Key Highlights
-
Multidisciplinary care approach involving pediatric orthopedics, neurology, and physical therapy.Focus on preserving mobility and delaying the progression of muscle weakness.Customized orthotic support to improve gait and prevent falls.Proactive management of contractures and skeletal deformities like scoliosis.Aims to enhance independence and quality of life for the child.
Who is this surgery for?
- Diagnosis of Miyoshi Myopathy with progressive muscle weakness, especially in the lower limbs.
- Development of joint contractures (e.g., ankle equinus) limiting range of motion.
- Significant gait abnormalities or frequent falls due to muscle weakness.
- Emergence of scoliosis or other spinal deformities affecting posture or function.
- Failure of conservative measures (like physical therapy) to maintain functional mobility.
How to prepare
- Comprehensive neurological and orthopedic evaluation to assess muscle strength, contractures, and skeletal alignment.
- Pre-operative imaging such as X-rays or MRI to evaluate bone and joint status.
- Consultation with a pediatric neurologist and genetic counselor for holistic care planning.
- Pre-operative physical therapy to optimize muscle condition and educate on post-procedure exercises.
- Nutritional assessment to ensure the child is in optimal health for procedure tolerance.
Risks & possible complications
- General anesthesia risks, including respiratory complications.
- Surgical site infection or delayed wound healing.
- Bleeding or hematoma formation.
- Nerve or blood vessel injury during the procedure.
- Incomplete correction of deformity or recurrence over time.
- Post-operative pain and stiffness requiring intensive rehabilitation.
Recovery & hospital stay
- Initial hospital stay for pain management, wound care, and monitoring of vital signs.
- Use of casts, braces, or orthotics to protect surgical corrections and support healing.
- Gradual, supervised physical therapy starting soon after surgery to maintain joint mobility and muscle strength.
- Regular follow-up visits to monitor healing, adjust orthotics, and assess functional progress.
- Long-term commitment to rehabilitation exercises and adaptive strategies to manage daily activities.
-
Typical hospital stay:
3-7 days
-
Expected recovery time:
6-12 months for full functional adaptation
Frequently Asked Questions
If you are considering miyoshi myopathy in Turkey, these questions and answers can help you make a confident, informed decision.
Top-rated hospitals in Turkey with pediatric orthopedics departments and experienced surgeons are ideal for this procedure. Use MediFyr to compare facilities, reviews, and doctor profiles before you decide.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform miyoshi myopathy. MediFyr helps you compare pediatric orthopedics and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for miyoshi myopathy compare across other countries where we have data.
Pooja Garcia is a 13-year-old, vibrant...
Pooja Garcia is a 13-year-old, vibrant girl who loves art and dreams of becoming an animator. Diagnosed with Miyoshi Myopathy at age 10, she comes from a close-knit family. Over the past two years, Pooja has experienced progressive weakness in her calf muscles, making it difficult to walk long distances, run, or keep up with her friends. She frequently trips and has developed a noticeable toe-walking gait to compensate. Her pediatric orthopedist, Dr. Evans, recommended bilateral Achilles tendon lengthening surgery to correct the equinus contractures, improve her foot positioning, and delay the need for ankle-foot orthoses (AFOs). The procedure went smoothly. Pooja was nervous but found comfort in the child-life specialist who used drawings to explain the surgery. Post-surgery, she spent two weeks in non-weight-bearing casts, which was frustrating, followed by a month in walking boots with intensive physical therapy. The recovery was challenging and painful at times, but after three months, Pooja's gait was significantly improved. She no longer toe-walks, trips far less often, and feels more stable. Emotionally, she felt isolated and 'different' before the surgery, mourning the loss of simple activities. Now, while she knows her condition is progressive, she feels empowered by having taken a proactive step. The surgery gave her a renewed sense of confidence and control, allowing her to focus more on her art and less on her next step.