Emery Dreifuss Muscular Dystrophy Treatment in Turkey
About Emery Dreifuss Muscular Dystrophy
Key Highlights
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Restores functional range of motion in contracted joints (elbows, ankles).Provides significant and lasting relief from chronic joint pain.Corrects joint deformities, improving posture and gait.Enhances independence in activities of daily living (ADLs).Performed by specialists experienced in complex neuromuscular disorders.Involves a tailored, multidisciplinary care plan for optimal outcomes./ul
Who is this surgery for?
- Severe, fixed joint contractures (especially elbows in flexion and ankles in equinus) that limit function.
- Debilitating chronic pain in affected joints not relieved by conservative therapy.
- Significant early-onset osteoarthritis secondary to abnormal joint mechanics in EDMD.
- Progressive joint deformity causing mobility issues or compromising hygiene.
- Failure of non-surgical interventions like intensive physiotherapy, serial casting, or orthotics.
- The goal to improve quality of life and maintain ambulation or upper limb function.
How to prepare
- Comprehensive pre-operative evaluation by a neurologist and cardiologist to assess muscular and cardiac status.
- Detailed orthopedic assessment with imaging (X-rays, MRI) to plan the surgery.
- Pre-operative physiotherapy to maximize muscle strength where possible.
- Discussion of anesthesia risks with an anesthesiologist familiar with muscular dystrophies.
- Pre-operative cardiac monitoring (ECG, echocardiogram) is mandatory due to associated cardiomyopathy.
- Planning for post-operative rehabilitation and support needs at home.
Risks & possible complications
- General surgical risks: Infection, bleeding, blood clots (DVT/PE), and anesthesia complications.
- Specific risks: Nerve or blood vessel damage near the joint.
- Prosthesis-related issues: Loosening, dislocation, wear, or failure over time.
- Increased risk of respiratory complications due to underlying muscle weakness.
- Challenges with rehabilitation and achieving full range of motion due to persistent muscle fibrosis.
- Potential for heterotopic ossification (abnormal bone growth around the joint).
Recovery & hospital stay
- Initial hospital stay for pain management, wound care, and monitoring of cardiac and respiratory function.
- Early mobilization with support from physiotherapists to prevent stiffness and complications.
- Use of braces or splints to protect the new joint and maintain position.
- A long-term, intensive, and tailored physiotherapy program is critical to regain motion and strength.
- Occupational therapy to adapt daily activities and recommend assistive devices.
- Lifelong follow-up with the orthopedic and neuromuscular team to monitor joint function and prosthesis.
- Continued cardiac surveillance as part of overall EDMD management.
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Typical hospital stay:
5-10 days
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Expected recovery time:
3-6 months for initial functional recovery; lifelong management
Frequently Asked Questions
If you are considering emery dreifuss muscular dystrophy in Turkey, these questions and answers can help you make a confident, informed decision.
Top-rated hospitals in Turkey with joint replacement departments and experienced surgeons are ideal for this procedure. Use MediFyr to compare facilities, reviews, and doctor profiles before you decide.
Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform emery dreifuss muscular dystrophy. MediFyr helps you compare joint replacement specialists and book consultations online.
The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.
Procedure cost in other countries
Here is an overview of how the estimated cost, hospital stay, and recovery time for emery dreifuss muscular dystrophy compare across other countries where we have data.
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