Emery Dreifuss Muscular Dystrophy Treatment in India – Best Hospitals & Doctors

Learn about Emery Dreifuss Muscular Dystrophy Treatment in India — how it works, who it is for, recovery timelines, and what to expect before and after surgery. Compare hospitals and doctors experienced in Emery Dreifuss Muscular Dystrophy and request assistance for cost estimates or appointments.

Partner Hospitals

1 partner in India for this surgery

Specialist Doctors

11 Surgeons linked to this surgery

Treatment Cost

Approx INR 250 Thousand – 600 Thousand

About Emery Dreifuss Muscular Dystrophy

Joint replacement surgery for Emery-Dreifuss Muscular Dystrophy (EDMD) is a specialized orthopedic procedure designed to address the severe joint contractures and early-onset arthritis that are hallmark complications of this genetic disorder. Primarily targeting the elbows, ankles, and sometimes the neck, the surgery involves removing the damaged joint surfaces and replacing them with artificial prostheses. The primary goals are to restore a functional range of motion, alleviate chronic pain, correct debilitating deformities, and significantly improve the patient's ability to perform daily activities and maintain independence. This procedure requires a highly coordinated, multidisciplinary approach involving neurologists, orthopedic surgeons, and rehabilitation specialists to manage the unique challenges of muscle weakness and cardiac involvement associated with EDMD.

Key Highlights

Restores functional range of motion in contracted joints (elbows, ankles).Provides significant and lasting relief from chronic joint pain.Corrects joint deformities, improving posture and gait.Enhances independence in activities of daily living (ADLs).Performed by specialists experienced in complex neuromuscular disorders.Involves a tailored, multidisciplinary care plan for optimal outcomes./ul

Who is this surgery for?

Severe, fixed joint contractures (especially elbows in flexion and ankles in equinus) that limit function.
Debilitating chronic pain in affected joints not relieved by conservative therapy.
Significant early-onset osteoarthritis secondary to abnormal joint mechanics in EDMD.
Progressive joint deformity causing mobility issues or compromising hygiene.
Failure of non-surgical interventions like intensive physiotherapy, serial casting, or orthotics.
The goal to improve quality of life and maintain ambulation or upper limb function.

How to prepare

Comprehensive pre-operative evaluation by a neurologist and cardiologist to assess muscular and cardiac status.
Detailed orthopedic assessment with imaging (X-rays, MRI) to plan the surgery.
Pre-operative physiotherapy to maximize muscle strength where possible.
Discussion of anesthesia risks with an anesthesiologist familiar with muscular dystrophies.
Pre-operative cardiac monitoring (ECG, echocardiogram) is mandatory due to associated cardiomyopathy.
Planning for post-operative rehabilitation and support needs at home.

Risks & possible complications

General surgical risks: Infection, bleeding, blood clots (DVT/PE), and anesthesia complications.
Specific risks: Nerve or blood vessel damage near the joint.
Prosthesis-related issues: Loosening, dislocation, wear, or failure over time.
Increased risk of respiratory complications due to underlying muscle weakness.
Challenges with rehabilitation and achieving full range of motion due to persistent muscle fibrosis.
Potential for heterotopic ossification (abnormal bone growth around the joint).

Recovery & hospital stay

Initial hospital stay for pain management, wound care, and monitoring of cardiac and respiratory function.
Early mobilization with support from physiotherapists to prevent stiffness and complications.
Use of braces or splints to protect the new joint and maintain position.
A long-term, intensive, and tailored physiotherapy program is critical to regain motion and strength.
Occupational therapy to adapt daily activities and recommend assistive devices.
Lifelong follow-up with the orthopedic and neuromuscular team to monitor joint function and prosthesis.
Continued cardiac surveillance as part of overall EDMD management.

Typical hospital stay: 5-10 days
Expected recovery time: 3-6 months for initial functional recovery; lifelong management

Frequently Asked Questions

If you are considering emery dreifuss muscular dystrophy in India, these questions and answers can help you make a confident, informed decision.

＋ − Which hospitals are best for emery dreifuss muscular dystrophy in India?

Popular choices for emery dreifuss muscular dystrophy in India include Manipal Hospital Salt Lake, known for experienced specialists and advanced surgical infrastructure.

＋ − How do I choose the right doctor for emery dreifuss muscular dystrophy?

Look at the doctor’s years of experience, hospital association, patient reviews, and how often they perform emery dreifuss muscular dystrophy. MediFyr helps you compare joint replacement specialists and book consultations online.

＋ − What factors affect the cost of emery dreifuss muscular dystrophy?

The overall cost depends on hospital category, surgeon’s experience, room type, implant or device used (if any), length of stay, tests, and post-operative care. Our team can help you get cost estimates from multiple hospitals before you decide.

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Procedure cost in other countries

Here is an overview of how the estimated cost, hospital stay, and recovery time for emery dreifuss muscular dystrophy compare across other countries where we have data.

Country	Estimated cost range	Typical stay	Recovery time	View details
India	INR 250 Thousand – 600 Thousand	5-10 days	~ 3-6 months for initial functional recovery; lifelong management	Know More
Turkey	TRY 875 Thousand – 2.1 Million	5-10 days	~ 3-6 months for initial functional recovery; lifelong management	Know More

Top hospitals for Emery Dreifuss Muscular Dystrophy in India

These partner hospitals in India have dedicated joint replacement teams and experience managing patients undergoing emery dreifuss muscular dystrophy.

Hospital

65+ Rating

Manipal Hospital Salt Lake

Kolkata, India
129 Doctors

PATIENT REVIEW

Neha Reddy, a 28-year-old software engineer,...

Neha Reddy, a 28-year-old software engineer, was diagnosed with Emery-Dreifuss Muscular Dystrophy (EDMD) in her late teens. The condition had slowly tightened her joints, particularly her elbows and ankles. Over the past three years, her left elbow had developed a severe, fixed contracture, bent at nearly 90 degrees. This made simple tasks, like typing, eating, or even washing her face, incredibly difficult and painful. It stole her independence and began impacting her work. Her neuromuscular specialist, after exhausting all conservative therapies like aggressive physiotherapy and splinting, referred her to an orthopedic surgeon specializing in complex joint issues. The surgeon recommended a total elbow arthroplasty (replacement), explaining it was the only way to restore functional range of motion and relieve pain. The surgery was technically challenging due to her muscle weakness, but successful. Post-operatively, Neha worked intensely with occupational therapists in a specialized rehab unit. The recovery was slow and required immense patience, but six months later, she could fully extend her arm and had a functional, pain-free arc of motion. Emotionally, Neha felt a deep grief for the progressive nature of her EDMD before surgery, fearing each loss of function. Afterward, while she knew it wasn't a cure, reclaiming the use of her arm brought profound relief and a renewed sense of agency. She felt empowered, not just by the new elbow, but by her own resilience through the process.

Joint Replacement Specialists for Emery Dreifuss Muscular Dystrophy

Explore experienced joint replacement specialists who regularly perform emery dreifuss muscular dystrophy and provide pre- and post-operative care in India.